Sunday, July 2, 2006

the Steadfast love of the Lord

"The steadfast love of the Lord never ceases, his mercies never come to end,
surely they are new every morning; great is his faithfulness."

Hello All-

Wanted to send a quick update and let you know that Micah is Home! He was able to come home Tuesday afternoon and has been feeling better each day! This is the best we've seen Micah in a long while! What a blessing to see him playing and running around; even getting into things.

Thanks for your continued prayers and your faithful support, what a difference you all make! Hope you all have a Happy 4th, we are sure looking forward to it!

Love,
Luke & Kriscinda, Braet, Micah, Cianne

Prayers Requests:
-The 6th and final round is scheduled to start July 7th, please pray for minimal side effects and quick recovery
-July 19th, MRI

Monday, June 26, 2006

God is in our Midst

The Lord you God is in your midst, a mighty one who will save; he will rejoice over you with gladness; he will quiet you by his love. Zeph 3:17

Wanted to thank you all for your prayers for Micah Man and give you a little update…
Life at Children’s:
Last night was crazy, with all the rain the roof was leaking and I dreamt I had a broviac (it’s so time to go home =), ceiling tiles needed to be taken down and half ¾ of floor’s patients had to be dispersed throughout the hospital due to all the leakage. Thankfully our room was not one of those. But our poor nurses have had their hands full!

Micah’s counts are going up wonderfully now, thank the Lord! In one day his counts went from 0 to 323 and then from 323 to 907! Can’t wait to see what Tuesday’s counts are!
Lil man is feeling much better than before! His bottom is still very sore and they are treating him for a urinary tract infection. However, he is much for joyful and calm. Micah’s blood cultures have been negative (which is a great thing) and as soon as he is fever free for 24 hours he can come Home!! He has been spiking fevers daily but hopefully with his counts coming up and the antibiotics they will soon go away. He is enjoying his big boy bed at the hospital and it has been great to see him smile and watch him play.

Thank you all for your care and prayers- it can’t be said enough. We so appreciate you all!
Love,
Luke & Kriscinda, Braeton, Micah and Cianne

Friday, June 23, 2006

Your Grace is Enough

Hello All!
Thanks for being with us for the long haul, your care, meals, timely cards and prayers provide much strength and encouragement. There have been over 4000 visits to this Carepage in just five months!!!! How you have blessed our hearts!!!

“Your Grace is Enough” ….has been the theme of our last few weeks. As we have sung, prayed and clung to scripture. Chemo is severe and heart ache abounds as we learned of 3 of Micah’s friends who will soon leave this world and be with the Lord unless the Lord miraculously heals them. Our hearts have been heavy for their parents and family, if you could please remember Chloe, Adrian and Abi as you lift up Micah Man. Despite the hardships, God is at work and continues to provide peace, hope, grace and strength for each day.
Micah came home Friday after finishing his 5th round of chemo and we were able to enjoy a weekend at Maw & Paw’s, hanging out with the fam before going back into Children’s on Tuesday due to a fever.
He has not been feeling well at all, his counts are still 0 (they have been there since Mon) and he has been given blood twice, platelets twice and is on a morphine drip to manage the pain. His bottom is very sore and the mucositis is back but thankful not as bad. His urine and blood cultures are both growing things, so he is also on antibiotics. It’s so hard to watch him like this, but God is near to us. We are praying that his counts come up quickly, his fever would go away and that he will be feeling better soon!! The kiddos have been so sweet to each other, what a blessing to watch! Just yesterday Micah & Cianne were laying side-by-side in his crib and Micah was giving her sugar! Luke & I have been able to be at the hospital together some which has been really nice and helpful for both of us. Micah is drinking well and hasn’t been throwing up (thank the Lord). He’s been watching movies, reading books and is tremendously comforted by holding Dadda’s hand. We continue to be well taken care of and even though we don’t like being at Children’s we have wonderful friends here!
And we will praise Him in the storm for his love abounds to us!

Much Thanks to All!
Love, the Davis Crew,
Luke & Kriscinda, Braet-Braet, Micahnator and CC

“The Lord is gracious and merciful…the Lord is faithful in all his words and kind in all his works…the Lord is near to all who call on him. Ps 145: 8, 13, 18

Updates:
-LAST round of chemo- scheduled for July 7th
-MRI- scheduled for July 19
-Cianne- thanks for praying for our little girl! Here is the update on her…she has hydronephrosis, it is not a severe case and usually corrects itself if not it will require surgery as she gets older. The docs will continue to watch it and we are setting up an appt with a specialist at Children’s. For more info http://www.duj.com/hydroneph rosis.html

Monday, June 5, 2006

Home Again

Howdy!

Micah was able to come home last Tuesday afternoon, he had been in the hospital for a week due to a fever, mucositis, and infection. The mucositis lingered for quite awhile but his counts were 3000 last Tues (that's is great and the docs double checked them to make sure that they were right because they came up so quickly- that Sat they were only 90!). He is also eating and drinking so much better and we pray it continues! Little man had been very weak but he has regained much of his strength and is walking better.
The fourth round was very hard for all of us.... Micah was extremely sick and we struggled so as we watched our little one suffer. The last couple of weeks has been an emotional one for us as we seek to trust and glorify the Lord despite this valley we are trudging through. We are standing on your prayers and encouragement, oh how they minister to us- what a huge means of grace. Even in the midst of our sadness and discouragement the Lord has been ever faithful and we have experienced much grace and mercy for each new day... a card, an email, friends communicating their prayers, even just crying together and He is faithful to meet us in our quiet times with Him. How blessed we are to have so many who serve us so well, graciously carry our burden with us and spur us on. What Love!
The little things in life are much sweeter and more meaningful than ever before- home, the park, an evening with friends, even lines at the grocery store =) (we're together!) and how marvelous to watch our little ones together. Cianne is doing wonderful and her brothers love her dearly! She will get to go with us to Children's for Micah's next admission since she will be a month old. She is still sleeping alot and rolled over for the first time on 6/2!! We love having her! Braet- humm- what to say except that God is incredibly gracious- he has done so well and is very kind to Micah, the other day in Sam's Club he bowed his head and folded his hands as we were shopping and started praying for Micah, "Dear Jesus," he said, "Please help Micah and make him all better." Okay, tear time! Kleenex anyone... we shouldn't leave home without them lately! =)

Again Our Love and Thanks!
Luke & Kriscinda, Braeton, Micah and Cianne

Specific Prayer
- Cianne still has fluid around her right kidney (she had a Sonogram on Friday and they will continue to watch it), her kidney is still growing well but we would love for you to pray that the fluid goes away
- That Micah would sleep well (he doesn't seem to be resting very well)
- For the 5th Round, ease and minimal side effects for Micah. Also peace for him, that his little heart wouldn't be scared being back at the hospital
-That our eyes would stay focused on Jesus and the cross, how he suffered for us in a way that we will never know to take away our sin so that one day we would be with Him- never to know pain or sadness again but only to glory in our Saviour- Oh what a Day!!

Wednesday, May 24, 2006

4th Round Over

Hey All!

Micah came home Fri after finishing his 4th round of chemo and receiving his stem cells. This last week went well but it was long =).... Luke and Micah were at the hospital this week (Micah had his broviac replaced Mon and started chemo Tues) and Braet, Cianne and I were home ~ we sure missed those two!!! These last 3 rounds (2 now) are trying and tiring mainly because Micah has to have a bath every 4 to 6 hours, round the clock for 72 hours (due to the chemo secreting through his skin- otherwise it would burn him) and he's not been to happy to see his docs or the nurses.

Even though it becomes increasingly harder to watch Micah go through this our little reunion on Fri was sweet. And we have been so aware of God's kindness! Micah's nurses continue to take of little Grouch with joy, Katie ( who must be stopped =) brings crafts and visits daily, the ladies and my amazing mother have been wonderful in caring for me (I have had a uterus infection this last week) ~ not to mention the guys calls, emails, and Cameron coming to "babysit" as Luke cared for Micah so selflessly this week. We were also able to go celebrate some B-day's at Maw & Paws this weekend- what Fun!

We would as usual love your prayers, Luke took back Micah to the hospital at 3:30am this morning due to a fever, he is wiped out from the chemo and has Mucositis. His counts are also at 0. So we are praying that his counts come back up quickly and his recovery is fast.

Thanks for your care, concern and many prayers for our family!
Love Ya,
Luke & Kriscinda, Braet, Micah and Cianne

Great Things!
*Micah is eating and drinking better so he doesn't have to be on TPN -Wonderful!
*He is still walking!!!

Specific Prayer Requests:
* That he would continue to eat and drink even more.
* That his fever and the mucositis would leave quickly and there would be no infection between now and his next round of chemo (tentatively set to start-on June 6).
* Joy and peace for Micah at the hospital.
* Wisdom for Luke and I and that we would "Trust in the Lord with all our hearts and lean not on our own understanding"

Thursday, May 11, 2006

Surprise- CC's Here!

Hello All!
Sunday we had a bit of a Surprise... my water broke and our little girl was born at 3:55 A.M on Mon, May 8th weighing in at 4 lbs 5 oz and 17 3/4" long. She is quite the peanut and Praise the Lord , she is doing wonderful! There have been no complications due to the early delivery (I was 35 weeks). We are all doing well and once again everyone has pitched in and is serving us so sacrificially.
Micah nd Cianne were both able to come home Wed and what a joy it is to be together! Micah goes back to Children's on Monday to have his broviac replaced (it was infected) and is due to start his 4th round of chemo this Tuesday. Because of infection in his urine he is in isolation and gets his own room for the next few times we are there (the down side is he can't leave his room but he has been doing great and this should be helpful when Cianne is able to travel to the hospital with us - in a few weeks)
Wanted to share with you an email Luke sent to remind me of God's goodness even when his wisdom and love seemed cloaked from our eyes...
*Micah had his Brovi removed which kept him in the hospital and prolonged chemo - if his Brovi were not infected he would have had chemo on Friday and would be starting to hit his low point, may have gotten a fever and been back in the hospital while little miss Cianne was home - this would have split our family apart this first week.
*Further, Micah is home without TPN, we don't have to wake him up throughout the night to change diapers and sheets (can you say laundry?) wearing us out on top of taking care of Cianne.
*Cianne being early made her tiny and made the delivery easier on you and will greatly reduce your recovery.
*Nick was in town and hadn't started work or an internship, it was Sherri's day off so they could watch Micah
*We were together in the same place when your water broke (I could have been at the hospital with Micah and you at home) and the nurses were able to sit with the boys until Nana got to Childrens
*Micah was found to have a bacteria in his urine which has no side effects on him, but yet gives us the biggest private room on the floor. - Micah has not even asked to leave his room and has so many toys and movies and playing space to keep him quite content. What's more is that we will continue to have a private room for the next three admissions which might finish out his treatments - this is a blessing to us. Not only to us, but it has made for a much more pleasant experience for both Sherri and Nick (their own bed instead of a chair, a private room and their own private bathroom with shower!) The infectious disease people told me today that he has had only one positive culture for this bacteria and were quite surprised at this - bacteria like this just don't go away overnight.

"I'm sure I could continue this list all night long - isn't it amazing - isn't it just like God? He chose us in Him before the foundation of the World - How great is the love of the father that we should be called children of God.
My love my hope is that you are encouraged and amazed by all that our God has done - and that we hang on to these things and more importantly the cross, when life "seems" a little crazy because we can know with certainty that He is in control and Sovereign over all."

What a glorious journey that no one could predict - but our heavenly Father is lovingly carrying us each step and has given us wonderful family and friends to care for us! Thanks guys! We Love You !
Luke & Kriscinda, Braet, Micah and Cianne

*Micah has started walking again (even though he is still wobbly) and what a joy to see!! Thanks for your prayers!

Specfic Prayer Requests
* 4th round of chemo would go well and with few side affects
* For wisdom in scheduling right now with caring for Cianne and being w/ Micah- constant change is here to stay =)
* That we would be focused on today and trusting the Lord for tomorrow

Wednesday, May 3, 2006

Grace Upon Grace

Grace upon Grace and Kindness on Kindness

We are still at Children's, making it our home away from home but much grace and kindness we have experienced….

*EEG test came back clear. The jerking has stopped and Micah is sleeping much better!! Thank the Lord.
Nana & G took the weekend shift so Luke & I got to go to Delaware this past weekend, Braet had spent the week there with Maw & Paw so we were able to come and visit, relax and catch up on some much needed sleep!
*Micah spent his 2nd B-day here (we were able to celebrate the weekend before with the fam at home) and the nurses ordered him cake & ice cream. Miss Katie and a few others brought him lots of fun gifts and balloons, we have been so overwhelmed by everyone's kindness and generosity!
*His chest x-ray was clear (he has been coughing a little so they wanted to make sure his lungs were clear)
*And Pathology…. Well we couldn't have asked for a better report!! The pathologist said they saw Necrosis (dead cancer cells) and white blood cells (they come in to do the clean up work) but as far as they could tell there was no tumor in the tissue. They can't guarantee 100% that there are no tumor cells hiding out but this is the best possible report and we are most grateful to the Lord!!

Micah is also feeling much better this week and he is back to his happy self! We are hanging out at Children's due to 2 positive blood cultures (meaning bacteria is growing in his blood samples) and low grade fevers. We are hoping to get a negative culture back, otherwise the docs will consider putting a new broviac line in before the next round of chemo starts (which is supposed to happen either Friday 5 th or Monday 8th). Luke & I are anxious to get home but are so thankful for how well Micah is doing and we're trying to be patient =). We have been meeting more wonderful people and our boys are being spoiled by Miss Katie (one of the ladies that works here)! Micah has even taken walks with her- unbelievable!! I think that is about all for the updates.

Thanks for all your continued prayers, calls, meals, emails, etc (you've done it all!). We have definitely felt your prayers, love and concern for us! Thank You!
Love, The Davis'
Luke & Kriscinda, Braet, Micah and Cianne

"but Jesus said, 'Let the little children come to me and do not hinder them, for to such belongs the kingdom of heaven.'" Mat 19:14