Thank you for all your prayers once again. Micah is doing so well. He is smiling (even at his nurses) and joyful. They have been able to to manage his nausea well with a few meds and his NG tube is out... due to the fact that his sodium is stabilizing- Praise the Lord! He is not eating since last week, which is to be expected since he just finished his 3rd round of chemo last Fri. They have started TPN (it is like a meal in a bag that runs through his IV) to make sure Micah gets all his nutrients, vitamins and doesn't lose too much weight.
Last Tues they had to replace another broviac - this makes his 3rd (please pray that this one stays in =) it can be rather traumatic!). His Methotrexate has just cleared and we arrived home this afternoon (Oh Happy Day- we were originally planning to go home Tues)! This is the longest it has taken this to clear- a full 7 days so we have been at Children's now for 12 days and were really ready to come home!! His white blood cell counts are currently zero and thank the Lord he doesn't have a fever or mouth sores, hopefully it stays that way so we all can stay out of Children's for a few days and can you believe it he still has hair (his nurses are amazed and have asked- Why does he have hair?)! He also had a kidney and hearing test, everything checked out well with the kidney test and we are still waiting for the results of the hearing test. He has just started his shots which will help to boost his counts. His hardest time is usually after the Methotrexate clears and his counts are the lowest, his body is the weakest then and that is when he feels the worst but so far he has still been very pleasant and only experienced some nausea and throwing up. We are praying that he continues to have minimal side effects and for his counts to come up quickly. Even though the journey is wearing we are so thankful the he is acting more like our old Micah Man! It so blesses us to his wonderful smiles and watch him enjoy the family, visitors and even the physical therapists!
We are so thankful for all the wonderful care we have received...babysitting, meals, continual notes of encouragement, calls, visits and prayer thank you all for being there for the long haul we can't imagine walking this road without you. We love you and dearly miss you! Thanks!
Luke & Kriscinda, Braet, Micah and lil sis (8 weeks to go!!!)
Specific Prayer
* That Micah will start eating and drinking. We aren't sure if he has a bad taste in his mouth or if mouth sores may be developing but he hasn't eaten much for the last 8 days. He is getting the TPN but the sooner he starts eating and drinking the better
* The Neuro Doc thinks Micah may have some neuropathy in his feet and legs (a tingling sensation or numbness) which makes walking very difficult, he hasn't walked on his own since before Chemo started, please pray that this goes completely away and he would have strength again in his legs & feet
* Peace for us for whatever the next step holds...Micah is supposed to have an MRI on Thursday of the brain and spine to check everything out and see if another surgery is needed before they start the higher dose of chemo
"He is not afraid of bad news; his heart is firm, trusting in the Lord. His heart is steady; he will not be afraid." PS 112:7-8
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