Hello Friends,
We've been waiting to write to you all with news from Boston- we thought we would hear back last week and then this week and now they had told us they will review next Wed. The earliest his treatment would start is the 3rd week of Sept (if we go forward with it). But we just wanted to drop you a line, let you know what was up and thank you for all your prayers and emails. They have been so encouraging. We have never had to make a decision of this magnitude before in Micah's treatment so all your prayers for wisdom and peace are so appreciated!!! We continue to learn more about radiation and by God's grace our hearts are at peace (even though it is a fight at times). Yesterday we went to Children's and met with Micah's oncologist. He has truly been a wonderful doctor, caring for Micah and our family, spending quite some time talking with us and answering our questions. As we talked we have learned that there are absolutely no numbers or statics for the ATRT with radiation. Again there have been 200 cases and only 15 have had the same type of treatment. Out of those-Children's hospital has one child living 7 years out from treatment. We are leaning away from photon radiation at NIH and still have questions about Bostons proton beam which hopefully we will know more about in the coming weeks. Micah Man is doing well. We are so thankful to the Lord that his life has been prolonged!! Today actually marks 1 month since Micah has been out of the hospital!! We love having him home with us! What bundles of joy the 3 of them are! This week we got to go see the Wiggles in concert (Micah really likes the Wiggles!) and had such a great time together! Again, Thank your for your prayers and continual encouragement. How you have blessed our heart!! All our Love, Luke & Kriscinda, Braeton, Micah & Cianne Encouragement from our pastor, Erik I believe the words, "make me know," "deliver me," "teach me," and "lead me" that the Psalmist cries out are relevant for you in this season. As are the Psalmist responses, "for you I trust," "for to you I lift up my soul," "I have fled to you for refuge," "for you are my God!" May He make his way more clearly known to you both in the days ahead. From Ps 143:8-10
Friday, August 25, 2006
Wednesday, August 9, 2006
Prayers for Wisdom & Peace
Hey All~
As well as giving you an update and thanking you for your prayers for wisdom and peace I also wanted to take a line or two and honor Luke...so he usually edits, clarifies and spell checks for me so bear with as he would have none of this- so I'm not sending it to him to proof read! =) The 12th is Luke's 28th B-day and I ...(tears)...I am so thankful for this man! His faithful and tender leadership of this family has been such a means of grace. His prayers and sacrifical care for each one of us. I think this weekend was one of the few times he has slept through the night since Jan. He is a true servant and wonderful dadda- who's prayers, talks, encouragement, songs, faith and correction have made this burrden much eaiser and more joyful ~ THANKS Baby! May peace prevail- Thanks be to God we have had peace, even though at times it is a fight (for me more so than Luke). We meet with NIH Mon and still feel like we know little, we haven't made any decisions yet. We still have questions to ask. And although we were very impressed with NIH, the facilities, the docs and nurses; the radalogist there said that Boston's proton beam might have the least effects on Micah's healthy brain cells (NIH does photon rad). So we are asking the docs to send Micah's file to Boston for them to look over and see what they think. For now we are praying for wisdom. The photon beam at NIH would hit all the areas around the 2x2x1cm area, this being motion,sensation, strength ( these they are not too concerened about), thinking, response,memory and personality- and they are not sure how much of an effect it would have on any of those areas. Plus it would likely have an effect on his IQ. So like I said, we are prusing Boston to find out more abour their proton beam. Your prayers for wisdom and peace are so appreciated! I can't tell you just have much they mean! We are going to be seeking counsel as we prayerful consider what to do for little man! Thank you for caring so much for our family!
Love From the Davis!
Ps 32 I will instruct you and teach you in the way you should go.
As well as giving you an update and thanking you for your prayers for wisdom and peace I also wanted to take a line or two and honor Luke...so he usually edits, clarifies and spell checks for me so bear with as he would have none of this- so I'm not sending it to him to proof read! =) The 12th is Luke's 28th B-day and I ...(tears)...I am so thankful for this man! His faithful and tender leadership of this family has been such a means of grace. His prayers and sacrifical care for each one of us. I think this weekend was one of the few times he has slept through the night since Jan. He is a true servant and wonderful dadda- who's prayers, talks, encouragement, songs, faith and correction have made this burrden much eaiser and more joyful ~ THANKS Baby! May peace prevail- Thanks be to God we have had peace, even though at times it is a fight (for me more so than Luke). We meet with NIH Mon and still feel like we know little, we haven't made any decisions yet. We still have questions to ask. And although we were very impressed with NIH, the facilities, the docs and nurses; the radalogist there said that Boston's proton beam might have the least effects on Micah's healthy brain cells (NIH does photon rad). So we are asking the docs to send Micah's file to Boston for them to look over and see what they think. For now we are praying for wisdom. The photon beam at NIH would hit all the areas around the 2x2x1cm area, this being motion,sensation, strength ( these they are not too concerened about), thinking, response,memory and personality- and they are not sure how much of an effect it would have on any of those areas. Plus it would likely have an effect on his IQ. So like I said, we are prusing Boston to find out more abour their proton beam. Your prayers for wisdom and peace are so appreciated! I can't tell you just have much they mean! We are going to be seeking counsel as we prayerful consider what to do for little man! Thank you for caring so much for our family!
Love From the Davis!
Ps 32 I will instruct you and teach you in the way you should go.
Thursday, August 3, 2006
Meeting w/ NIH
Hey All!
Wanted to let you know that we will be having our meeting with NIH to see what they recommend on Mon, Aug 7th at 10:30. We have both been doing well, by God's grace, waiting for their recommendations. Remembering that God gives grace and strength for each day and not our imagination has been vital. There was however an anxious feeling in my stomach as I made the appt for Mon- turn once again to the Lord! Luke and I are going on a little vacation this weekend! We will be attending Luke's 10Y High School Reunion while Nana & Maw Maw take care of the kiddos! Hopefully the munchkins aren't too crazy =) We will sure miss them but are looking forward to a little R&R (rest, relaxation, reflection & refreshment -I think that about covers it) Micah Man is continually getting better and we are enjoying being home! He has a wonderful nurse, Sue Brewer, that comes to the house to take care of his blood work and other stuff. We have been kinda laying low and staying cool, next week I'm sure we'll be a bit more adventurous and get out. We were able to go to church for the first time in 6 months as a family on Sun and that was great! Micah seemed to really enjoy the worship time, clapping his hands and singing. Anyway, just wanted to give you a head up on our meeting. Thanks for praying for us!
Love, Luke & Kriscinda, Braeton, Micah & Cianne
And he shall stand and shepherd his flock in the strength of the Lord,in the majesty of the name of the Lord his God. And they shall dwell secure, for now he shall be great to the ends of the earth. And he shall be their peace. Micah 5:4-5
Wanted to let you know that we will be having our meeting with NIH to see what they recommend on Mon, Aug 7th at 10:30. We have both been doing well, by God's grace, waiting for their recommendations. Remembering that God gives grace and strength for each day and not our imagination has been vital. There was however an anxious feeling in my stomach as I made the appt for Mon- turn once again to the Lord! Luke and I are going on a little vacation this weekend! We will be attending Luke's 10Y High School Reunion while Nana & Maw Maw take care of the kiddos! Hopefully the munchkins aren't too crazy =) We will sure miss them but are looking forward to a little R&R (rest, relaxation, reflection & refreshment -I think that about covers it) Micah Man is continually getting better and we are enjoying being home! He has a wonderful nurse, Sue Brewer, that comes to the house to take care of his blood work and other stuff. We have been kinda laying low and staying cool, next week I'm sure we'll be a bit more adventurous and get out. We were able to go to church for the first time in 6 months as a family on Sun and that was great! Micah seemed to really enjoy the worship time, clapping his hands and singing. Anyway, just wanted to give you a head up on our meeting. Thanks for praying for us!
Love, Luke & Kriscinda, Braeton, Micah & Cianne
And he shall stand and shepherd his flock in the strength of the Lord,in the majesty of the name of the Lord his God. And they shall dwell secure, for now he shall be great to the ends of the earth. And he shall be their peace. Micah 5:4-5
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