News from Boston

Hello Friends,
We've been waiting to write to you all with news from Boston- we thought we would hear back last week and then this week and now they had told us they will review next Wed. The earliest his treatment would start is the 3rd week of Sept (if we go forward with it). But we just wanted to drop you a line, let you know what was up and thank you for all your prayers and emails. They have been so encouraging. We have never had to make a decision of this magnitude before in Micah's treatment so all your prayers for wisdom and peace are so appreciated!!! We continue to learn more about radiation and by God's grace our hearts are at peace (even though it is a fight at times). Yesterday we went to Children's and met with Micah's oncologist. He has truly been a wonderful doctor, caring for Micah and our family, spending quite some time talking with us and answering our questions. As we talked we have learned that there are absolutely no numbers or statics for the ATRT with radiation. Again there have been 200 cases and only 15 have had the same type of treatment. Out of those-Children's hospital has one child living 7 years out from treatment. We are leaning away from photon radiation at NIH and still have questions about Bostons proton beam which hopefully we will know more about in the coming weeks. Micah Man is doing well. We are so thankful to the Lord that his life has been prolonged!! Today actually marks 1 month since Micah has been out of the hospital!! We love having him home with us! What bundles of joy the 3 of them are! This week we got to go see the Wiggles in concert (Micah really likes the Wiggles!) and had such a great time together! Again, Thank your for your prayers and continual encouragement. How you have blessed our heart!! All our Love, Luke & Kriscinda, Braeton, Micah & Cianne Encouragement from our pastor, Erik I believe the words, "make me know," "deliver me," "teach me," and "lead me" that the Psalmist cries out are relevant for you in this season. As are the Psalmist responses, "for you I trust," "for to you I lift up my soul," "I have fled to you for refuge," "for you are my God!" May He make his way more clearly known to you both in the days ahead. From Ps 143:8-10