the Next Step

We have talked with the docs and the MRI looks great! Micah's tumor started off about the size of a fist and the reports now say "that there is no evidence of disease." However there is still something, the dimensions are about 2 x 2 x 1 cm. Whether it is blood & dead cancer cells (which the previous surgery seemed to indicate) or some tumor cells mixed in, they are unsure off- but something shows up. Regardless our docs are in agreement and would like us to proceed with 6 weeks of radiation followed by 6 months of low dose chemo due to the agressive nature of this tumor (ATRT). There have been about 200 recorded case of this tumor and 15 children that have gone through the same regimen as Micah. Please pray for wisdom for us and the docs--- radiation was not something we were anticipating. Radiologists at NIH will be looking over Micah's MRI and deciding what type of radiation would be best for Micah (the radiation- if we decide to do it- will be done at NIH or in Boston). After they look over it we will meet, talk about the risks and benefits (we should hear back from Radiology in 2 weeks) and then we will decide where to go from there. We were not expecting the docs to suggest radiation and we've shed tears and shared a few fears and most of all we are turning to the Lord for wisdom. I spoke with one of Micah's little friends parents, who have done some research on radiation and when I shared that there was a possibility of Micah under going rad his response was, "That's great, it's been really effective," not my first response but a good reminder of how blessed we with the medical technology. We truly appreciate all your support and would covet your continued prayers! We came home yesterday afternoon, Micah's counts are 4000!!! Thank the Lord, he only stayed at 0 for one day this time! He is still a bit fussy and it is hard to know how much is that he is sick (he is on antibodics and cutting his two year molars) and how much is him being two. So we are trying to find indoor activities to help keep our little ones busy! =) "When my heart is trouble and my strength fails, I will trust in You. When shadows of doubt creep into my soul, I will trust in You. For you are faithful oh God, Faithful my God- Never leaving, never forsaking, ever present help."
Much Thanks & Affection
Luke & Kriscinda, Braeton, Micah & Cianne