Thursday, September 7, 2006

He's Got Personality

Hey Friends!

We are home! It has been a month and a half now! Micah's personality has exploded, in a wonderful way! We saw glimpses of in the last 8 months but nothing like this... it's full throttle and we are loving it!!! Luke took us camping last weekend and it was great...covered in dirt, smelling like smoke, marshmallows smeared across faces, rain, mud, parties in the middle of the night with CC and Micah,cuddling around the campfire- Oh the memory making =) We have updates but before you read on would ask that you read with hearts full of faith. The Lord is sustaining Micah the same ways he's sustaining each of us, it is only by his grace, mercy and goodness. Micah's life is already a miracle, just the shear fact that he is with us today! We are trying to take one day at a time not walking were the path hasn't yet led. We heard from Boston.... and they don't believe that Proton beam radiation will have any benefit for Micah because of where the tumor is located. We have decided not to pursue radiation for Micah. The risks are high and unknown for damaging his brain. Be it minor- special education or major- feeding Micah and causing loss of memory, thinking capacity and personality. On top of the risks there is no evidence to tell us that radiation would significantly helps our little man. The docs think the tumor is likely to come back even with radiation. So given this info we will not due rad but will start 6 months of low dose chemo. This will be every day either in liquid or tablet form (please pray for us - Micah already has a hard time taken his other medicine). Also Micah will have an MRI every 3 months, the next one will be in October. How are we? Well we are doing good, God is so kind and gracious to us! There are moments of sadness or anxiousness when we observe Micah struggle with weakness, fall down or do something unusual (as it is our temptation to think something is wrong). But again we are trying to take one day at time- enjoying, living, learning, growing. Not wondering about the future but trusting the Lord will provide strength, joy and grace for whatever path we are called to walk. Thank you for your continued prayer, care and concern for our family. There is no way to thank you and tell you how much it means!
All Our Love Luke & Kriscinda, Braet, Micah & CC

Strengthen the weak hands, and make firm the feeble knees.Say to those who have an anxious heart, "Be strong; fear not!Behold, your God will come...He will come and save you." Is 35:3-4

Prayer Requests-
- For Micah and the low dose chemo that he would have little side effects and that taking the chemo would be easy for him (currently he is on 3 meds by mouth and they are not easy to give to him). The low dose chemo has to be taken by mouth, everyday for 6 months
- Strength- Micah is still walking with a limp in his left leg
- Day by Day- that our heart would be calm and peaceable
- Complete healing, that the tumor will never return

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